We made our way to Philadelphia today...these travel days feel so long.
We are so grateful that over all the travel details went smoothly.
Isla was SO brave. She was facing a lot of anxiety but kept bravely asking questions and trusting us with each step. We see her growing in her communication and while she doesn't fully understand any of this, she is putting pieces of the puzzle together and talking with us through what is happening. She is bravely sharing bit by bit about how she feels. We praise God for all these victories and are so very proud of her. It has been such a hard season and while we praise God for these life-saving surgeries for Isla, it is still so hard to do this. We see God and feel God at work...we trust him for each day.
We made a video of the day... we do this to remember the details but also love to share it with you.
(CLICK HERE) VIDEO OF TRAVEL DAY
Tomorrow is Pre-op day - We will head over to CHOP for tests, x-rays, see one of the NP's and will have a video pre-op visit with Isla's orthopedic surgeon (he is out of the city tomorrow).
Friday is surgery day (VEPTR expansion and spinal cord detethering)
Please keep praying for Isla and our family! We are so grateful!
Praying for you, sweet Isla! I love your beautiful purple butterflies!
ReplyDeleteoh, Molly! Such a touching video. Our great God sees sweet Isla and is helping carrying all of you through this tough journey. May you feel his comfort and love in deep and powerful ways this week. She is so adorable in purple! Thank you for sharing with us. Praying for your sleep and rest and strength and stamina and for all those tests tomorrow. Hugs, Jenny
ReplyDeleteLord Jesus, we thank you for Isla and for the Sindelar family. Please be with them now on this day of preparation. We know that You are advocating for them before the Father. Please calm any fears they may have, and thank you that Isla is asking questions and sharing her feelings. Let her feel safe and beloved today! Thank you, and amen.
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